(This post is not quilt-related and it may be emotional, so feel free to ignore it. And if you’re on my Facebook page, you may have already seen this.)
Some of you know that I have a grandson, Amalya Nathaniel (his name means “Work of the Lord, Given by God”). He had a neural tube defect called anencephaly. This is a 100% fatal condition. Often, babies with this condition pass away before birth. Knowing this, my daughter and son-in-law still chose to carry him to term. He was born in September 10, 2012, and we were so blessed that he lived an hour and twenty minutes. My daughter and son-in-law chose to create a lasting legacy for him by donating his liver, pancreas, and full body to medical research. Since that time, my daughter has established a website called Purposeful Gift so they could help other expectant parents facing similar situations, and so they could give accurate information about neonatal organ donation. They’ve also had the opportunity to travel around the country to share their story with various medical groups.
Here’s my proud grandma moment: one organization chose to do a video documentary about their story! My daughter blogged about this part of their journey on her website.
You can see the ten-minute documentary about their journey here, or click on the picture below.